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YOUR KID WAS JUST DIAGOSED WITH CANCER. NOW WHAT? You’ve just been handed a new full-time job… and you need to learn it. Prepare to project manage your child’s home care. As amazing as you are, you CANNOT do this alone. If you don’t have bandwidth to take this on full-time, find someone who can lead the care NOW. Not when you are desperate. You can often find a way to have home nurse visits covered under insurance (eg, preventing recurring mucositis / mouth sores was our way in). You will burn out in time and your kids need your energy level and anergy vibration high to encourage him / her on this fight. After you find some help, you need a system to train and manage that help so it does not impact your child’s care. I’ve created a system that is “plug and play”. Dowload it, customiize is with you medical team & hostpital system, and print it out to make your binder. https://docs.google.com/document/d/1Xusm1XmtWuFXMnqtnOUhPAKx0lvXx2ih98mn3nP3RoM/edit
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